A Dysphagia Resource for Professionals and People with Difficult Swallowing

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What is Dysphagia?

Dysphagia is the medical term for difficulty swallowing. It is when people have trouble moving food, liquid, pills or even saliva out of the mouth, through the throat and esophagus (food tube), and into the stomach.

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Resources We Offer

 

SwallowStudy.com Blog

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Stay up-to-date in the field of swallowing and swallowing disorders (dysphagia). Read, comment and ask questions on my latest collection of hot topics.

Snacks for People with Dysphagia (IDDSI Style)

Snacks for People with Dysphagia by Karen Sheffler, MS, CCC-SLP, BCS-S of SwallowStudycom   Oh my! How many...

Diet Modification Without Mastication Evaluation?

Diet Modification Without Complete Mastication Evaluation by Karen Sheffler, MS, CCC-SLP, BCS-S of...

Reflujo Silencioso

  REFLUJO LARINGOFARÍNGEO (REFLUJO SILENCIOSO) Por Karen Sheffler, MS, CCC-SLP, BCS-S de...
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General Resources

Find out more on dysphagia, swallow studies, and more with this compilation of educational information for all.

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Clinical Resources

Central place to guide clinicians through the online dysphagia world and provide useful resources to enhance patient care.

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Product Reviews

Expert-opinions on a wide range of dysphagia products and resources for people with difficulty swallowing and their caregivers.

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About Karen Sheffler, MS, CCC-SLP, BCS-S

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I graduated from the University of Wisconsin-Madison in 1995 with master’s degree in Speech-Language Pathology. There, I was influenced by great mentors in the field of swallowing and swallowing disorders (dysphagia) like Jay Rosenbek, JoAnne Robbins, and James Coyle. Once the “dysphagia-bug” bit, I have never looked back.

Initially, I worked in skilled nursing facilities and rehabilitation centers, but since 1999 I have been in acute care. I obtained my Board Certification as a Specialist in Swallowing and Swallowing Disorders (BCS-S) in August of 2012. I am committed to life-long-learning. I was awarded my 7th ASHA Award for Continuing Education (ACE Award) in June 2020. I am committed to increasing public awareness in dysphagia. I am a member of the Dysphagia Research Society (DRS), the American Speech-Language Hearing Association’s Special Interest Group 13: Swallowing and Swallowing Disorders, and the National Foundation of Swallowing Disorders (NFOSD). I am co-chair of the Public Relations Committee of the American Board of Swallowing & Swallowing Disorders. I was awarded the Hormel Health Hero Award in 2019.

I started SwallowStudy.com in May 2014 to create a valuable evidence-based dysphagia resource for professionals and patients.

Latest News

 

Hormel Health Labs Health Hero Award

Karen was the first recipient of the Hormel Health Labs Health Hero Award!

Read the full article: Health Hero Advances Dysphagia Research – Hormel Health Labs

JUNE is National Dysphagia Awareness Month

June is National Dysphagia Awareness Month in the United States! Check out Karen’s posts on her Twitter and Facebook pages (@SwallowStudySLP). Read more about Dysphagia Awareness Month here.

In 2019, she posted over 70 times to raise awareness during the month of June.

In 2020, follow Karen’s posts on Facebook @BCSSwallowing & Twitter @BoardSwallowing. (Karen is co-chair of the public relations committee for the American Board of Swallowing and Swallowing Disorders/ABSSD). The ABSSD did a “Caring for Caregivers” Series (see infographic gallery here) with infographics honoring caregivers across the lifespan! Additionally, follow hashtags: #DysphagiaAwareness and #Dysphagia across social media.

Read more about #dysphagia with this article on RightAtHome.net, written after interviewing Karen Sheffler (in 2019): https://www.rightathome.net/blog/dysphagia-difficulty-swallowing-in-older-adults

Dysphagia Research Society (DRS) annual conference May 2019

Karen attended the Dysphagia Research Society’s (DRS) annual conference March 6-9, 2019. In spring 2020, she completed her 2 year term on the DRS Website, Communications, and Public Relations Committee, which assisted with fundraising and social media promotion for the event. This global conference drew people to San Diego, CA from 24 different countries. Karen had thousands of people following her 85+ live tweets, helping to connect the global dysphagia community of clinicians and researchers. Karen has also been promoting the International Dysphagia Diet Standardization Initiative (www.IDDSI.org) for years, and she is seen here at the IDDSI booth at the 2019 DRS conference with the IDDSI co-chair, Peter Lam. RD, CFE.

#DRS2020 was cancelled due to the COVID-19 Pandemic. Click here for the electronic version of the planned sessions, poster hall and exhibitors.

We all hope to be back in person in for next year’s annual meeting in San Francisco –March 9-12, 2021!

Karen attended the Academy of Nutrition and Dietetics

Karen attended the Academy of Nutrition and Dietetics’ (AND) Food and Nutrition Conference Expo (#FNCE17) for the first time. This was a great opportunity for interdisciplinary networking. Karen presented at the Hormel booth to raise awareness about the International Dysphagia Diet Standardization Initiative (IDDSI). Karen (middle) is here with Peter Lam, RD, CFE, Co-Chair of IDDSI (on left) and Tim R. Garry, RD, LD, Director of Marketing for Hormel Health Labs / Hormel Food Sales, LLC

A True IDDSI Champion

Karen is an IDDSI Champion and has been writing blogs and lecturing about IDDSI to raise awareness since 2014. Karen is pictured here again with Peter Lam, RD, CFE, Co-Chair of IDDSI (Note: Peter’s co-chair is Dr Julie Cichero, BA, BSpThy(Hons), PhD, who is a Speech-Language Pathologist in Australia).

Karen is displaying a colorful IDDSI informational poster. Go to www.IDDSI.org/Resources/ to download your own IDDSI posters, Powerpoints and more.

Free IDDSI Webinars

Karen’s IDDSI Presentations:

1. BeckyDorner.com, providing the following 2 FREE webinars, brought to you by Hormel Health Labs. Learn more about IDDSI by listening to both of the webinars at: https://www.beckydorner.com/hormelhealthlabs/

Webinar 1: The International Dysphagia Diet Standardisation Initiative: The Who, Why, What & How

Webinar 2: Teamwork From Regulatory Requirements to Successful Implementation Webinar

2. NEW 15-20 minute IDDSI Training Modules at Hormel Health Labs:

Sign up for free inservice training series for your staff and get test kits to test foods and liquids IDDSI-style! https://www.hormelhealthlabs.com/resources/for-healthcare-professionals/in-service-training-series-iddsi-testing/

Online Dysphagia Seminars at Summit Education

Karen provided live one-day seminars on dysphagia for Summit Professional Education in New Jersey, Minnesota, and New York in 2018.

The course is now available online at Summit Professional Education. Course title: What Every Therapist Needs to Know About Dysphagia: Swallowing Screening, Evaluation, & Treatment to Maximize Safety & Quality of Life.

It is at the intermediate level and is a broad-sweep across the field, including: why to be concerned about dysphagia, why and how to advocate for your patients, screening, evaluation, treatment, palliative care/ethical considerations, IDDSI and more. It is designed for SLPs of all experience levels who need to make sure they have the latest evidence-based practices and resources. Karen and Summit encourage OTs and PTs to attend as well for excellent interdisciplinary care. Please notify Summit Education if you have a group interested in a live seminar near you.

Want more courses? Check out:
Medications: Drug-Induced Dysphagia, Complications, and Potential Treatments

3D Printed Pharmaceuticals Summit

Karen presented at the first ever 3D Printed Pharmaceuticals Summit on November 8, 2018 in Livingston, NJ. She was invited to be on a panel titled: 3D Printing of Pharmaceuticals and Biologics to Address Unmet Medical Needs. The conference was sponsored by the Center for Medicine in the Public Interest (CMPI.org) and Aprecia – The 3DP Pharmaceutical Company (Aprecia.com).

Dysphagia is a significant unmet need in traditional drug manufacturing, as people struggle every day to safely swallow their medications. Please see Karen’s blog for more exciting information on how 3D printing will revolutionize what we think of as a finished drug product.

American Speech-Language & Hearing Association (ASHA) in Boston, MA

Karen spoke at the 2018 national convention of the American Speech-Language & Hearing Association (ASHA) in Boston, MA. Together with Theresa Richard, MA, CCC-SLP, BCS-S from SwallowYourPride podcast, she spoke about revolutionizing the old concept that the videofluoroscopic swallow study/VFSS (aka, modified barium swallow study) is the only gold standard for dysphagia evaluations.

When an SLP is thoroughly evaluating an individual’s difficulty with swallowing, it cannot be a dichotomy between just the traditional two exams of the VFSS versus the FEES/Fiberoptic Endoscopic Evaluation of Swallowing. You choose the exam that best fits your clinical questions and hypotheses. Your evaluation process may include one of these exams, both, none, and/or the myriad of other ways to evaluate the swallow with appropriate referrals to our other colleagues in the field of deglutition (i.e., gastroenterologists, otolaryngologists, etc). To reflect this thinking, Karen coined the new term of a “Platinum Standard of Personalized Medicine.”

This means that you are using a personalized medicine approach for you dysphagia evaluations. Your more precise evaluations will lead to targeting treatment to the individual’s needs. Read more on personalized medicine and precision medicine in Karen’s blog.

ASHA COVID-19 Updates / Telepractice

Speech-Language Pathologists and related healthcare providers can stay on top of COVID-19 recommendations by the American Speech-Language & Hearing Association’s (ASHA) by visiting the www.ASHA.org website often. This is a quickly changing pandemic and crisis.

Please also see the “Take Action” links on the ASHA website, such as urging Congress to expand Medicare for telepractice so that people with Medicare DO NOT HAVE TO PAY OUT OF POCKET for basic essential healthcare services, such as monitoring the safety of their swallowing: https://www.asha.org/News/2020/Urge-Congress-to-Expand-Medicare-Telehealth-for-Audiologists-and-SLPs/.

Important Resources: 

  1. ASHA, SIG13 (Special Interest Group for Swallowing and Swallowing Disorders) posted these SLP Resources on COVID19 & Telepractice (PDF)
  2. Stay up-to-date on ASHA.org: https://www.asha.org/About/Coronavirus-Updates/

Caring For Caregivers Discussion with Researchers & Clinicians

Karen Sheffler, MS, CCC-SLP, BCS-S & Yvette McCoy, MS, CCC-SLP, BCS-S (on behalf of the American Board of Swallowing and Swallowing Disorders) hosted a live discussion for June’s Dysphagia Awareness Month. ABSSD’s focus this month has been on caring for caregivers. The discussion, recorded on June 18th, 2020, explored research around caregiver burden when a loved one has difficulty swallowing (dysphagia). Listen to a presentation of the research, tips for what clinicians can do to reduce caregiver burden, and a questions and answers session. Thank you Ashwini Namasivayam-MacDonald, PhD, CCC-SLP, SLP(C), Reg. CASLPO; Samantha Shune, PhD, CCC-SLP & Theresa Richard, MA, CCC-SLP, BCS-S for your presentations and contributions!

Go to @BCSSwallowing on Facebook for the recording.

See More Live Events Hosted by the ABSSD PR Committee:

Make sure you also scroll down on @BCSSwallowing to April 24, 2020 to see the Facebook Live Event with Dr Georgia Malandraki, PhD, CCC-SLP, BCS-S on Telehealth recommendations for dysphagia evaluation and management. See also https://www.purdue.edu/i-eatlab/telehealth-recommendations-for-dysphagia-management-during-covid-19/

Online Training & Webinars

 

With her clinical expertise, connections with researchers around the world and witty humor, bring Karen on to enrich your next conference, lecture series or webinar.

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Testimonials

I used Ms. Sheffler as an expert on a nursing home choking death case. Her report was one of the best expert reports I have seen in thirty years of practice. The report was very helpful in getting the case resolved at mediation. She was quick and thorough with her work and it was a pleasure working with her.

Defense Attorney

What may seem like an insignificant gestures of outreach on your part have contributed so greatly to my professional growth in the past year already - that no amount of praise would be sufficient! The level of advocacy you offer and the breadth and depth of knowledge you possess on this topic is unfathomable.

Anthony Lewis, M.A., CCC-SLP

Thank you very much for your involvement in this case as an expert. Your report was very helpful in assisting the parties in settling the case.

Defense Attorney

I highly recommend Karen Sheffler’s VFSS courses on SpeechPathology.com! Karen’s presentation style was engaging and the information was in depth yet easy to understand. I gained functional knowledge that will improve my clinical decision-making in dysphagia.

Nina Ziemba, M.S., CCC-SLP

Karen’s ability to reach and educate professionals and the public from her review of current literature and conference proceedings helps us all!

MARTIN B. BRODSKY, PHD, SCM, CCC-SLP, ASHA FELLOW

Karen has a wonderful way of synthesizing science for clinical audiences. Her ability to communicate clearly and apply scientific results to real challenges in the clinical world is extremely important and goes a long way to filling the knowledge translation gap that scientists face.

Dr Catriona M. Steele, Ph.D., CCC-SLP, BCS-S, S-LP(C), Reg. CASLPO, ASHA Fellow

Karen Sheffler is an inspiring clinician and colleague. As an expert in the area of swallowing disorders (dysphagia), she has contributed greatly to our profession. She has written informative evidence-based articles, summarizing and translating the latest research in a simple and easily comprehensible format for clinicians and researchers alike.

Rinki Varindani Desai, MS, CCC-SLP

Thank you for your presentation. Your extensive knowledge and sense of humor helped to advance the knowledge base of our attendees. It was an asset to the program.

A hospital-based Geriatrics Program Committee

I want to personally thank you for taking the time to review this matter for us and for our client. Your willingness to devote your time to the review of this matter helped us to achieve an excellent resolution

Defense Attorney

Karen Sheffler was a great speaker, educating our audience of Dietary Managers and Registered Dietitians on IDDSI. She is so easy to work with, and she provided many great additional online resources for the audience to get more information.

Mary Sell, MPA, RDN, LD, Menu Services Manager, Martin Bros. Dist. Co., Inc.
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