Time for IDDSI Updates

By: Karen Sheffler

July 28, 2022

Iddsi launched in the US May 1, 2019. See this launch date advertised at the Dysphagia Research Society meeting in 2019 by Karen Sheffler (of SwallowStudy.com) and Peter Lam (an IDDSI co-chair).

IDDSI launched in in the USA per ASHA and the AND in May 2019. Then COVID-19 hit. Where are you now with IDDSI implementation?

7 IDDSI Updates

by Karen Sheffler, MS, CCC-SLP, BCS-S of SwallowStudy.com

Did you know that over 50 nations around the world have started to implement the International Dysphagia Diet Standardisation Initiative (IDDSI). This has been a global consensus on foods and drinks that are ordered and prepared for people with difficulty swallowing (dysphagia). The vision is for improved patient safety (aka, risk mitigation) for all ages, all cultures/languages, and in all care settings (including people at home). We will all be using the same terminology for the different solid food levels and drink levels (see framework on IDDSI.org and in image below). Imagine, no more guess work by the skilled nursing facility when selecting a diet for your loved one. The diet texture will be already identified based on the person’s swallow study and labeled by the hospital (e.g., Soft & Bite-Sized, Level 6 and Mildly thick liquid, Level 2) who will communicate with the same diet terminology as the nursing facility down the street.

Nations around the world have been forming work groups (aka, reference groups) to foster IDDSI implementation. It is inspiring to have global IDDSI meetings with large nations like Brazil, Mexico, Canada, and China, as well as smaller nations such as Iceland, Myanmar, Azerbaijan, Portugal, and the United Arab Emirates. It truly is a global wave of standardization of food and liquid textures (aka, dysphagia diets).

The American Speech-Language and Hearing Association (ASHA) along with the Academy of Nutrition and Dietetics (AND) declared May 1, 2019 as the official launch date for IDDSI in the USA. Then COVID-19 hit! Many facilities that were deep in the middle of IDDSI implementation were derailed. In the United States, the United States IDDSI Reference Group (USIRG) formed in early 2021 to support implementation across the nation with a large group of active volunteers who are generating resources and answering questions.

I am on the USIRG’s Communication & Advocacy and Resources & Best Practice work groups. We have been busy! Regarding resource development, we are curating and creating resources that are US-specific. We have been trying to gather resources that facilities have already created. We hope that organizations/facilities around the nation are keeping up with IDDSI updates and sharing with other facilities. It would be nice to not have everyone re-invent the wheel. However, some proprietary regulations in some healthcare organizations have prevented faster dissemination of those resources and handouts. If you are able to share with others around the nation, please contact usa@iddsi.net. You can also contact usa@iddsi.net to ask questions and provide ideas on what resources need to be developed.

Feel free to join one of our 4 committees as seen here:

USIRG United States IDDSI reference group has four committees shown here: Communication & Advocacy, Resources & Best Practice, Research/Data Collection, and Education/Training

7 IDDSI Updates & Encouragement to Connect

Check out my prior IDDSI Resources blog for many links to documents on the www.IDDSI.org website, as well as a long list of my prior IDDSI blogs dating back to 2014!
When you come back and are ready for more,
here are my latest IDDSI updates:

 

1. USIRG IDDSI Chart of Many Resources:

Go to —> https://iddsi.org/United-States

Check this United States chart often, as we are adding to it frequently. I highly recommend checking out the resources of other countries that are also listed on the www.IDDSI.org homepage.
Here are some examples of our USIRG resources (which can be used/translated as needed by other countries):
  • USIRG IDDSI Webinars (see section #4 of the USIRG chart): We have IDDSI 101 and 201 PowerPoint Videos for Food Service Workers & Caregivers, Healthcare Professionals, and Administrators. The links in the USIRG chart bring you to a YouTube video where the USIRG speaker guides you through the PowerPoints.
    • IDDSI 101s start with easy and quick introductions to IDDSI.
    • IDDSI 201s train the IDDSI Testing Methods across the whole framework. There is a 201 for Food Service Workers and a more in depth 201 for Healthcare Workers (RDNs, CDMs, SLPs, etc.).
  • USIRG Best Practice IDDSI Terminology (Powerpoint): It is so important to use IDDSI approved terminology. This PowerPoint teaches how it is best practice to use two identifiers when discussing or writing about the IDDSI levels. (We use two identifiers with our patients of name and date of birth and/or medical record number, so IDDSI does the same to avoid confusion). For example: Mildly Thick, Level 2; Minced & Moist, Level 5; Soft & Bite-Sized, Level 6. We cannot change these descriptive labels. For examples, a Minced diet definitely needs Moist attached to it to make it safe. Level 6 needs to be written as “Soft & Bite-Sized” as both of those terms appropriately describe how that diet can mitigate (reduce) a choking risk; the food needs to pass the Fork Pressure Test for “soft” and needs to pass the bite-size of 1.5cm to not block an airway (see Testing Methods details here). This Terminology PowerPoint also provides the 3-character approved abbreviations for your computer systems.
  • Competencies: It is important to document the training that you and your coworkers are undertaking in IDDSI. We have completed the competency quizzes for the 101 and 201 trainings. For example, see the 101 Competencies for Food Service Workers & Caregivers and other competencies in the USIRG chart.
    • We would love it if facilities would share their ideas and forms for staff competencies (i.e., how to demonstrate staff trainings).
    • One idea that some facilities have used is to use the IDDSI Audit Tools for each IDDSI level and turn them into staff training sheets for demonstrating the IDDSI Testing Methods for each level.
  • Check out the Frequently Asked Questions (section #6 in the USIRG chart). Have you ever wondered about Jell-O, sauces and gravies, and how to manage writing exceptions on a case-by-case basis outside the IDDSI framework to meet the goals and wishes of the people you serve?
  • Current USIRG work group projects include:
    • Making the IDDSI Patient Handouts more user friendly to the United States audience. (They were written with some British-English vocabulary, such as Lollies, Biscuits, and Crisps!).
    • Cataloguing over 500 articles into an IDDSI literature evidence table.
I will keep you all posted on IDDSI Updates & new links above (last edit 2/14/22).

Readiness for IDDSI Updates starts with knowing the IDDSI framework with pyramids for solids and drinks/liquids, along with the sidebar for transitional foods. Each IDDSI level has a name, color, number and triangle icon. Use at least two identifiers when talking or writing about IDDSI levels, such as Mildly Thick Liquid, Level 2.

2. Hormel Health Labs Resources:

3. SimplyThick.com Resources

IDDSI Funnel for IDDSI Flow Test. Similar to the 10ml syringe, but the top is wider for easy pouring into the syringe. Markings on the side for testing IDDSI levels 1, 2, 3.

IDDSI Funnel for IDDSI Flow Test. Similar to the 10ml syringe, but the top is wider for easy pouring into the syringe. Markings on the side make measuring liquids clear for testing IDDSI levels 1, 2, 3.

4. Food Scientists & Chefs Train IDDSI:

a. IDDSI Webinar on Myths & Truths:

Peter Lam (IDDSI co-chair) hosted this myth busting online event with expert rheologist and IDDSI Testing guru Dr. Ben Hanson and dysphagia culinary and foodservice specialists Preston Walker and James Ball from Oak House Kitchen. The live panel discussion will cover the science involved and the culinary know-how behind making food for the IDDSI Framework. Go to IDDSI’s YouTube Link: https://youtu.be/mQ75b7sKxtU.

b. More IDDSI & Oak House Kitchen Webinars:

  • The Science Behind IDDSI: Dr. Hanson, IDDSI Board Director, is joined by Peter Lam (IDDSI Co-Chair), and discusses the science and methodology behind IDDSI testing methods
  • Myths and Truths about Modifying Foods for IDDSI levels. Preston Walker and James Ball, of Oak House Kitchen, have been training healthcare catering for over 10 years. Their current focus in this field is on the transition to the IDDSI standards and have been working on how best to achieve this.

c. Rubiconfoods.com

Some chefs and dietitians from the USIRG and Rubicon Foods have teamed up with Pineapple Academy, LLC to make quick videos on how to prepare foods and drinks IDDSI-style. To see examples of how to puree, vacuum seal, shape and plate meats to prepare a perfect Pureed, Level 4, check out this free sneak peak to their trainings: www.rubiconfoods.com/iddsi/.

5. E-Bites & IDDSI website: Stay Informed of Any IDDSI Updates & Events

  • Sign up for IDDSI Global’s e-bites / newsletters
  • Check out the e-bites for the USIRG at the bottom of our resources chart here: https://iddsi.org/United-States.
  • Follow IDDSI on social media: Twitter, Instagram, LinkedIN
  • Follow IDDSI on YouTube for great food and drink testing videos and many webinars. These cover IDDSI across all ages and the continuum of care. These will help you train your staff. Many of these food and drink testing demonstrations have been translated into other languages. My favorite one to add to training PowerPoints is the beginning of this one that covers some of the choking dangers of bread: https://youtu.be/W7bOufqmz18
  • Download the IDDSI app. You can even use this in a person’s home to train the person with dysphagia and their caregivers. Once the content is downloaded, you can view it without the use of wifi.
  • Check out popular IDDSI training posters.
  • IDDSI has been translated into 20 languages so far. See available translations and how you can help expand this list.

6. Keep Asking Questions, such as:

Is IDDSI Mandatory? Do I have to Change?

Can you give me a list of IDDSI approved foods?

I will answer these questions with slides from my PowerPoints that answer them in a pretty way! Here is a link from IDDSI.org, sharing about how IDDSI is now the only professionally-recognized standard of care.

Feel free to use any images or let me know if you need PowerPoint content. IDDSI’s mission has always been to make content free and accessible around the world.

This answers if IDDSI is mandatory. It is not considered mandatory, but it is NOW the only professionally-recognized dysphagia diet framework. Changing to IDDSI is important to stay up-to-date with evidence-based standard of care.

Can IDDSI provide a list of IDDSI-approved foods for each IDDSI level? No, as it is dependent on the testing methods and food and drink characteristics of each level. IDDSI is global and can be used to analyze foods and drinks from around the world.

 

We need to clear up common confusions and misunderstandings about what IDDSI is:

      • IDDSI does not mandate what patients are or are not allowed to have. That is a decision to be made by the whole medical team, of which the person with dysphagia is the driver. IDDSI pairs with person-centered care well.
      • IDDSI does not mandate what you as a dysphagia clinician or registered dietitian recommend for the person with dysphagia.
      • IDDSI is a set of standardized labels, descriptors and definitions for foods (regular through puree) and drinks (thin liquid through extremely thick).
      • IDDSI provides testing methods to prepare and test foods to standardize what is potentially easier and safer for an individual with difficulty chewing, swallowing or clearing foods through the mouth, throat and esophagus.
      • IDDSI is a tool to help you clearly discuss options related to consuming foods and liquids.
        • We finally are all talking the same language, understanding what we mean by “soft,” “puree,” “thick liquid,” “easy to chew,” and more.
        • Old diet labels (such as “mechanical soft”) have no standard definitions and have been the source of numerous choking deaths around the country.
        • Old diet systems (such as National Dysphagia Diet) were too subjective and did not have testing methods or descriptors based on evidence.
        • Read more on Why IDDSI? in this mission statement found in our USIRG resource chart.
      • Clinicians have a conversation with the person (and/or healthcare proxy if the person is deemed unable to make complex decisions).
        • IDDSI does not dictate what is best or safest for the person. One cannot prevent aspiration and/or choking 100% of the time. We offer options to mitigate risks, though.
        • Clinicians use their clinical judgement, expertise, evidence-based practice, guidance from comprehensive dysphagia evaluations (that may include instrumental evaluations) to make recommendations.
        • Clinicians provide options (aggressive through palliative, as appropriate). We provide education, counseling, and potential prognostic information (i.e., are you having difficulty swallowing, what can we do about it, and how long will it take to get better?). Sometimes we recommend diet modifications temporarily for very acute problems while waiting for further testing, resolution of symptoms, and/or for a targeted therapy program to hopefully improve the swallowing and mealtime success. Sometimes diet modifications are needed more long-term. Each person is an individual.
        • The medical team, which includes the person with dysphagia, discusses and considers options. It is the person (or healthcare proxy) who makes the informed decision on care without coercion of waiver forms (which have been used when a person does not agree with the recommendations of a healthcare provider, who is not using person-centered care). 
Do you have other questions? See IDDSI’s FAQs already posted.
See USIRG’s Frequently Asked Questions section (#5 in chart) for answers that have been carefully crafted by our group of SLPs, dietitians, and food service professionals. More FAQ topics will be added as we process them.
If you have burning USA-specific questions for the USIRG, please email:
usa.bestpractices@iddsi.net
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7. Connect & Volunteer

  • Being a part of IDDSI is being a part of a global consensus wave of standardization for patient safety! Exciting collaborations happen across countries, such as:IDDSI Updates around the world. This photo is of Karen, from SwallowStudy.com meeting up with Frida from Iceland to make international IDDSI connections!
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Thank you for reading.
Please share what your updates, successes, challenges, and solutions
you have had in implementing IDDSI!

March 2023 IDDSI Updates:

IDDSI Updates on Funnels:

NEW: You can now purchase the funnels on the IDDSI website. Go to IDDSI.org –> Resources Tab –> Funnels (or https://iddsi.org/Resources/Funnels). The link is on that page, along with pdfs for Instructions For Use, Testing Cards, and Instructional Videos. Thank you IDDSI!

IDDSI’s International Reference Groups Gathered at #WDS2023 & #DRS2023

The International Dysphagia Diet Standardisation Initiative (www.IDDSI.org) has developed Reference Groups around the world to assist with IDDSI implementation and translation. We have been meeting within our United States IDDSI Reference Group (See USIRG’s country specific content) since 2020. Now, over 50 countries around the globe have created IDDSI Reference Groups. It has been so inspiring to attend virtual meetings for over a year now, joining all these Reference Groups together to support one another. In March 2023, we had a combined meeting in San Francisco of the World Dysphagia Summit (WDS) and the Dysphagia Research Society (DRS) Annual Meeting.

It was exciting to finally meet our colleagues in person from Reference Groups from many different countries, such as: Brazil, Chili, Colombia, Mexico, Canada, Japan, Austria, Germany, Netherlands, Australia, our newest representative from Kuwait, and more.

It has been a global wave of consensus in a standardized framework. We now all “speak the same language” when it comes to labeling, defining, describing, and testing all levels of solids and liquids (from regular solids through all the dysphagia diets and thin liquids through all 4 levels of thickness).

Please note: IDDSI is a standardized tool that in no way dictates or mandates. The clinician still uses clinical skills to give rationale and make recommendations. The medical team (of which the person is in the center) uses informed decision making. IDDSI does not promote diet and liquid modifications, but the person with dysphagia and the rest of the medical team finally has a defined framework to allow for clear communication of diet options when using a person-centered care approach. To reiterate this point, the USIRG has created a person-centered care statement:

USIRG’s PERSON-CENTERED CARE (PCC) STATEMENT

The IDDSI Framework cannot change, but the diet order can be individualized. Person-centered diet orders specify an individual’s needs within and outside the IDDSI Framework. The medical team works in collaboration with the person’s wishes, preferences, goals of care, and individual abilities. Risks and benefits may be addressed in the informed consent process. Clear orders, communication, and documentation are key to person-centered care.

The IDDSI Framework with Detailed Definitions and Testing Methods finally makes this communication process clear and easy to educate on the options.